Death in the Digital Age

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This morning I was reading The Cut when I came across an excerpt from the soon-to-be released memoir from Erin Lee Carr. Erin is a filmmaker and the daughter of David Carr, the storied NY Times reporter and one of my journalism heroes. In the excerpt, Erin details the day her father died suddenly in 2015. In the midst of the chaos and grief left behind a sudden death, she also had to grapple with the unexpected, unwelcome publicity that fell upon her and her family like an avalanche just mere minutes after viewing her father’s lifeless body in the hospital.

I could barely breathe as I read her words, on this day of all days. The 19th anniversary of my mother’s sudden death. Like Erin, I remember distinctly getting the call that something happened and I needed to rush to the hospital. Like her, I remember the terrifying, disorienting trip to said hospital, and the crush of pain and disbelief upon arriving and finding your parent is gone. Even after all these years, I can still remember exactly how it felt–the unrelenting, unbearable agony.

In that first year following her death, I cried all the time. I was terribly depressed, as one would expect. Nothing in my life felt right. I was unmoored, lost without the person who’d been my guiding light, my rock, the one I knew I could always depend on, no matter what.

Time has dulled and shaped my pain. I don’t cry over her so much anymore. My grief isn’t so immediate–it’s manageable. Sure, it still surprises me sometimes, but for the most part, I have it under control. And the events of that horrible day 19 years ago have gotten blurrier. While I can still feel the terror and despair as acutely as I did in those moments, the memories of that day are foggier and broken–chunks of time rather than a full mental narrative. There’s actually some comfort in that, too, as it makes it more difficult to replay the events of that day over and over in my mind–these are moments I’d rather not relive.

As I read Erin’s words, I couldn’t help feeling so terrible for her having to deal with such a loss in this digital age, where her phone dinged every couple of seconds with texts, social media posts and calls. I can’t imagine the added stress of all of that on top of the pain of processing your parent’s death.

I sometimes feel lucky that my mom died before we became so digitally connected. I don’t have to worry about electronic reminders of her loss haunting me–there’s no abandoned Facebook profile or dormant Twitter feed to obsess over. I didn’t have to answer a mountain of texts or DMs after her funeral. Instead, I had the quaintly analog task of mailing paper thank you cards provided by the funeral home. Sure, I got tired of licking envelopes, but it was the kind of activity you can do to zone out and take your mind off what’s really going on.

A lot has changed in these past 19 years. But one thing is still exactly the same–I miss her, every single day, so very much.

Eighteen

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The strangest thing happened today.

It’s Easter, so we rose relatively early this morning to see if the bunny visited our house last night (he did). We enjoyed a leisurely breakfast. We played outside in the balmy spring sun with my son’s new Easter goodies.

It wasn’t until late in the morning when I checked Facebook on my phone that it hit me–today is April 1.

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This photo showed up in my feed via the “On This Day” feature. Of course, I shared this two years ago today. It’s April 1, the day my mom died.

For the last 17 years, I’ve dreaded this day. This box on the calendar, with its power to transport me to the past, to the single worst day of my life (yes, even trumping the day of my diagnosis). This date that changed my life and my family forever.

But this morning, I spent hours blissfully unaware. I blame the fact that Easter fell on April 1 this year, providing a happy distraction. For a few moments, it felt like just another day, and not a reminder of what I’ve lost.

I think this would make my mother happy. I think she’d smile seeing me play with my son, enjoying every moment of his joy over his Easter basket, and my elation at being able to provide that joy.

I think she’d be thrilled to see me spending part of this day at my in-laws’ house, sitting in the sun with my mother-in-law, who loves me like one of her own. I think it would do her heart good to know that I have these incredible people–who’ve welcomed not only me, but my entire family into theirs–in my life.

Briefly forgetting what today is doesn’t say anything about my grief or how much I still miss my mother. What it does remind me is how incredibly blessed I am to have this family and this life that can produce enough joy to, even if momentarily, blot out the searing pain of her loss. I think that’s something that would make her very happy, indeed.

Mother’s Day

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Me, my mom and my younger sister, 1985?

For many years now, Mother’s Day has been a difficult holiday for me. I lost my mom about a month-and-a-half before Mother’s Day 2000, and since then, the day has been a yearly reminder of the huge void in my life.

But over the past few years, I’ve slowly started to change my perception of this day.

In the decade since I met my husband, I’ve joined him in celebrating his mother, my now mother-in-law. From pretty much the moment I met her, she has treated me like a part of her family. And while she’s not a substitute for my own mom, she has become someone I depend on, confide in and love as I would my own mother. I am so grateful to have her in my life.

I’ve also been so very fortunate to have a circle of lifelong friends whose mothers I consider second-moms. I grew up in these women’s homes, and they’ve rallied around me when my mother passed, when I got married, when I had a baby and when I faced cancer. The love these women have shown me over the years makes my heart swell, and I am so thankful to have the kind of friends who gladly share their wonderful mothers with me.

I’m also truly blessed to have an older sister who’s shown me what it means to be a great mom. Dawn is 14 years older than me, and she’s raised two intelligent, kind, successful women, instilling them with a sense of confidence and a strong faith that sustains and guides them. When I think about the kind of mom I want to be, I often look to her example.

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Me and my sweet boy, photo by the amazing Jordan Brannock

And, of course, the biggest and best thing that has changed my feelings about this day is becoming a mother, myself. My son is my greatest gift, my greatest achievement, my greatest love. He fills my heart with a feeling of pure joy and love that I never thought possible. He inspires me to be a better person, and he makes everything I’ve endured over this past year worth it.

Is Mother’s Day still a hard day for me? Absolutely. I will never stop missing my mom, and the hole that her loss has left in my heart will never be filled. But I know that I am lucky to have some incredible mothers in my life, and I have the opportunity to be that for my son, and for those things I am forever grateful.

Notes from the OR

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Pre-op fashion

Yesterday’s oophorectomy went well. My doctor didn’t see anything that looked weird (huge sigh of relief), and the procedure was pretty uneventful. I was home by around lunchtime.

My torso scar collection has grown by three, although these are pretty small (and let’s be honest, my bikini days are over anyway). I’m sore, but it’s not unmanageable–much less pain than my c-section or mastectomy.

I’m not going to lie, it was a little sad to take a pregnancy test (standard procedure) and then sign a form confirming that I realized going through this procedure meant I wouldn’t be able to have any more children. It’s weird because even though we’d already made the decision to only have one child, the finality of all this still feels like a loss.

But what I’m gaining–some additional peace of mind–is worth it. At the end of the day, I have to remember that it’s not about mourning children that won’t be, but celebrating the gift of time with the precious child I do have.

In Dreams

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For the first couple years after my mom died, I had a recurring dream about her.

The dream would change slightly, but would always involve her still being alive, and having left us in some other way. She and my dad would divorce, or she would simply go away, only to return later. I would wake up from these dreams so angry. Why did she leave us? How could she abandon us when we needed her? And then once that half-asleep anger subsided, the wave of pain and grief would wash over me.

I suppose this was my subconscious’ way of sorting out her loss. Her death was so sudden, so completely jarring, that my psyche just didn’t know what to do with it.

I haven’t had one of those dreams in a long time–until today.

I took a sweet nap with my son this afternoon, a rarity these days since he’s hitting that age where naps aren’t guaranteed. In the midst of our slumber, she returned.

This time, I found out she’d faked her death to leave us. But she eventually came back and moved into an apartment in my hometown. She would occasionally text me, or send me a card in the mail, but we never saw each other.

In the dream, I called my dad, asking him about her. He said they’d gone to dinner and they’d had a good time. He said she seemed happy, and he seemed OK with whatever the status of their relationship was. I tearfully asked him if she said anything about seeing me or my sister, or ventured to explain why she left. He said no to both counts. Then he changed the subject and started talking about something unimportant that I didn’t care about–this, a bit of reality since he has a tendency to do that when the conversation hits a subject he’s uncomfortable with.

Upset, I went to see my sister. I asked her if she’d seen mom, and she said no, sort of in an exasperated way, like, “Not this again, just let it go.” But I couldn’t let it go. I remember saying, “Why would she go to such lengths to leave us? Why doesn’t she want to see us? Why doesn’t she want to meet Alex?” She didn’t have an answer.

The last thing I remembered before waking up was trying to figure out why she’d gone to so much trouble. I recalled standing in the funeral home, looking at her lifeless body in the casket–the bruises on her forehead from the dashboard, still visible through the heavy pancake mortician’s makeup. The plastic wrapping I could see around her wrist inside the sleeve of her dress–likely some sort of preservation method since we had to wait a week to hold her funeral because my dad was so banged up from the accident. Was none of that real?

I awoke with that same dazed, angry feeling I haven’t felt in years. And then the familiar rush of sadness. Alex was snuggled close to me, and I held him a bit tighter and kissed the top of his head, breathing in the sweet scent of baby shampoo and wild boy. There’s no way she’d miss this.

Grief is a sneaky beast. Just when you think you’ve got a handle on it, when it feels like enough time has passed to ease the burden, it sneaks back up on you, often in unexpected ways.

I’ve missed my mother so acutely the past few years. Through my pregnancy, motherhood and my cancer journey, I’ve longed to talk to her. To lean on her. To hear her voice tell me she loves me. That it’s going to be OK.

There are some losses you never get over. Some that shake your faith and leave you wondering what the hell just happened. Time passes and you learn to manage it, to move on and keep living. But that grief is always there, waiting to haunt you even on the prettiest of days.

Seventeen Years

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My sister, mom and me at the Outer Banks sometime in the ’80s.

I hate April Fool’s Day.

I’ve never really been into pranks or trickery, and there’s something about this day that gives mischief more of a mean-spirited edge. And social media has made it even worse. Every year there are the fake engagement and pregnancy announcements, fake moving announcements, fake whatever announcements. It’s annoying and not really funny at all.

Of course, my hatred of this day is about more than just an intolerance of childish tomfoolery. My mom died in a car accident on April 1, 2000.

There’s something especially cruel about getting the dreaded call from the hospital that there’s been an accident on April Fool’s Day. For a split second I thought, “is this some kind of horrible joke?”

This year, the anniversary fell on a Saturday, just like the day it actually happened. My sister Wendy texted me in the wee hours of Saturday morning, likely awake with her thoughts, to tell me that having the anniversary fall on a Saturday again makes it harder for her. I nodded as I read her words, feeling the exact same way.

Just as it was on that horrible day in 2000, April 1 this year was absolutely gorgeous. One of those warm, not-a-cloud-in-the-sky days that make you revel in spring. As I sat in my backyard looking up at that sea of light blue, I couldn’t help thinking back to that day so many years ago.

It’s kind of amazing that I can remember most of the details of that day as clearly as if they’d happened just last week. I remember the slight nip in the air, what I was wearing (a pastel striped t-shirt from Old Navy and jeans), what I was doing when the phone rang (lying on my dorm bed, waiting for my parents to arrive for a visit). I remember bargaining with God as I careened down I-40 to the hospital in Chapel Hill. I remember realizing my mom was gone when the hospital staff ushered me into a small, private waiting room outfitted with an overabundance of tissue boxes and Bibles. I remember being taken back to see my father, unconscious on a gurney, disrobed and covered with a sheet up to his chest–preparation for surgery. I remember the stunned voices as I called family and friends to tell them the awful news.

In the years since her death, I’ve tried to mark her anniversary in a positive way. Some years I’ve volunteered or participated in a charity walk, others I just try to do fun things to keep the mood light and my mind off the sadness.

This year, I spent the day with Rodney and Alex. We ate pancakes for breakfast, snuggled in bed watching cartoons, went to swim class, went to our neighborhood Easter egg hunt and played in the yard. Nothing particularly remarkable, but without a doubt a good day.

I think this is what my mom would want–her loved ones moving on, living their lives. She’d want to be remembered–and she was–but I don’t think she’d want me or my sister to dwell. I told Wendy this when I returned her text. I asked what she had planned–a trip to Virginia with her boyfriend to see an art exhibition–and told her my plans for the day. And then I told her I loved her.

I know somewhere out there in the ether, my mom was glad.