Parellel Lives

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One of my nurses during my first chemo session was pregnant. She was one of those lucky women who stayed slim with little more than an adorably round belly to let others know she was expecting.

Judging from the size of said belly, I surmised she was likely due around the same time I had my son. Sure enough, she told me her due date was Oct. 2, the day before my son’s birthday (his due date was Sept. 30, but like his mama, he’s not exactly on the punctual side).

After making this realization, we laughed and swapped some war stories about surviving the third trimester in North Carolina during the hottest part of the year. As she and I talked, I had the odd feeling once again of being on two opposite, but sort of parallel journeys, just two years apart.

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Oh, sushi. I already miss you so.

The first time I felt this way was during chemo class (yep, that’s a thing) when the nurse gave us the rundown of all the foods we should avoid while in treatment. The list was almost the exact one my OB had given me two years prior when I was pregnant with my son–sushi, undercooked meat, unwashed fruit and veggies, etc. In both cases, the risk of infection can cause major problems, so it’s better to be safe than sorry.

There are other little things, too, like counting weeks of pregnancy vs. weeks of treatment, feeling intense cravings for fruit and vegetables and, of course, being hyper-aware of my changing breasts.

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Baby’s first beach trip

I loved being pregnant. And even though I was as swollen as the Stay-Puft Marshmallow Man by the end of it, it was one of the greatest experiences of my life. Feeling a living being grow inside you is almost indescribable, it’s that amazing. I’ll never forget the feeling of kicks turning into rolls and, my favorite, when he would get hiccups. It was all so wonderful (well, except those bladder kicks–I could have done without those).

So, to think that just two short years ago I was over the moon with excitement over becoming a mom, experiencing this miraculous process of creating another human being inside me, is kind of hard for me to wrap my mind around. Because over the past few months my body has been creating something else inside, something I neither wanted nor suspected was there. To live inside a body capable of both these things is scary and confusing. How did this happen? How did I go from one extreme to the other so quickly?

That’s the thing about both pregnancy and cancer–they both remind you that you have very little control over your own body. Sure, there are plenty of things about ourselves that we can manage, but at the end of the day, our bodies will do what they do, whether we like it or not. We can react to those changes and either go with or fight them, depending on the scenario. While I was definitely a go-with-the-flow woman in pregnancy (and I am in life, in general), this time around I’m fighting, and I’m fighting hard. Because that little baby needs me, and I plan to be here for him as long as I can.

Coming Out of the Fog

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Aside from the jaw-dropping fatigue I’ve experienced with chemo, the hardest thing for me is the phenomenon known adorably as “chemo brain.”

I’d heard about this affliction before, but until I was in the throes of it myself, I had no idea how hard it would be to deal with.

Since I never really got physically ill from my first treatment, I thought I was in the clear as far as side effects go. Obviously a little brain fog and sleepiness are far superior to puking, but it just never really occurred to me how hard those “lesser” side effects would be.

I’m an editor by trade, so my job is to read and rework copy, and also to write stories for a magazine. This is work that you need a clear head to complete. Grammar and punctuation, not to mention syntax and overall organization, are sort of hard to figure out when you’re not firing on all cylinders.

Yes, this was an opportunity to take it easy and take some time off. My very kind boss and coworkers urged me to do just that. But that’s not how I operate. I need to work. It makes me feel normal. It makes me feel useful. And it feeds my passion–I love writing and editing. It’s not just a job for me; this is something I truly enjoy doing.

So, not being able to craft a clever turn of phrase, or whip some lackluster copy into something that sings really is hard for me. Looking at a Word document and feeling utterly overwhelmed because I don’t even know how to begin to approach it makes me feel like I’m out of control. My brain function is something I can’t harness and use as I want, like I’m so used to, and that drives me absolutely batty.

Thankfully, the past two days (now 5-6 days out from treatment) have been better. I know that I probably need an extra day to veg out after my next treatment. I know to be easier on myself. But it won’t be easier to do that, because even though I know self-care is the right thing at this point, it’s the hard thing, and not being wired to operate that way is a challenge I had no idea I’d have to face.

Chemo Crash


I started chemo on Thursday. The first time is filled with questions: How will I feel? Will it hurt? Will I get sick?

Obligatory chemo selfie

For me, it just felt weird. I can’t really explain it any other way. There wasn’t pain, and thanks to anti-nausea meds, I didn’t get sick beyond feeling a little queasy.

On Friday, I felt good enough to go wig shopping and have lunch with my son, who is staying with family this weekend (good preparation on my part). I was tired enough for two little naps, but not overly wiped out.

Fast-forward to today, Saturday. Holy hell, am I pooped. I have slept almost all day. Eating is an exhausting chore. I can barely muster the energy to text back well-meaning friends checking on me. This blog post is probably the biggest thing I’ve done all day.

I really hope tomorrow is better. A restful day is nice, but this is a little much.

Boulders in the Road


This has been a week of proverbial bumps in the road of my journey. But those “bumps” felt more like giant boulders.

The first came in the form of a spot near my tumor picked up on an MRI. A biopsy this week (which was a barrel of fun in itself) confirmed everyone’s suspicion that it was indeed more cancer.

But it was smaller, and my lymph nodes and right breast still looked OK, so I rolled with it.

Then came the call from the genetic counselor: I am positive for the BRCA2 breast cancer gene mutation.

I did not handle this one quite as gracefully. While this answers the question of why this is happening now, it also changes things quite dramatically.

The lumpectomy is off the table. I’ll get a bilateral mastectomy with reconstruction. And I’ll also have my ovaries removed, since the gene also is linked to ovarian cancer.

My sister will need to be tested. And when he’s older, my son will, too (the gene also is linked to prostate and pancreatic cancers).

That last part just destroys me. I can handle my own shit, but knowing he might have to deal with this risk is almost too much.

I know that in many ways, I’m lucky. Knowledge truly is power, and that’s even more true when you’re fighting a shady beast like cancer. But knowing also hurts, because there’s no delusion or denial of how hard this is going to be.

It’s Just Hair

I cut my hair this week.

Knowing that it’s going to fall out once I start chemo, I figured it would be easier to deal with that loss if less hair was actually hitting the floor/shower/pillow.

A haircut might not sound like a big deal, but for a long hair devotee like me, it’s a major change. How major? This is the last time I had short hair:

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In case you can’t tell by my amazing fashion and way-cool Geo Storm, this is 1999.

That’s right folks, I haven’t had short hair since the ’90s, when I was growing out my Dharma & Greg haircut (I also had the Rachel–I was really into sitcom hair back then).

I love my long hair. It’s thick and shiny and pretty.

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R.I.P., long hair.

I told my stylist about my cancer diagnosis, and she was understandably shocked and saddened. She’s been styling my hair for nearly a decade now, and she and I have known each other through getting married, buying houses, having kids–all the big stuff.

Since she knows me so well, I knew she’d be able to help me through this process. We decided on a sassy layered bob. I probably should have gone shorter, but this was already pretty drastic for me, so I decided to stick with what felt comfortable.

But first, I had to take care of my roots.

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Sex-ay!

I know it was probably stupid to spend good money on highlights for hair that’s going to fall out in a few weeks, but getting my color done just felt normal and good. I need every chance I can get to feel normal and good right now.

The actual process of getting my hair cut wasn’t as scary as I thought it would be. A few snips and it was gone. And once my amazing stylist was finished, I actually felt excited about my new ‘do.

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Hello, awkward selfie.

I know this look won’t last long, but I’m enjoying it while I can. In fact, I’m actually thinking about staying short once my hair grows back in.

I know the real hair drama is still ahead of me. My stylist made me promise to call her when I’m ready for the clippers. I know that cut will be different and much less fun. But, hair grows back, and right now I’m trying to remember that it’s a small price to pay to meet a much greater goal.

 

The End of Breastfeeding

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I was one of those lucky moms who was able to breastfeed their child. We hear all this stuff about “breast is best” and women feel an incredible amount of pressure to breastfeed their children. The reality is that, yes, breastfeeding is great for babies. But it’s also incredibly hard. And sometimes, it just doesn’t work out. Babies won’t (or can’t) latch correctly, moms don’t produce enough milk, etc., etc.

The first couple of months were really hard for my son and me. There were plenty of tears from both of us as we found our way, but eventually we did, and established a pretty good groove. So good, in fact, that I breastfed much longer than I ever intended to–21 months.

I always said I’d be thrilled to be able to do it for six months. I never thought I’d be an extended breastfeeding mom. But my son never lost interest, and honestly, I’d backed myself into a corner using the boob as a crutch to soothe him and get him to go to sleep at night. I was actually ready to stop, but afraid I’d never get him to sleep again.

Then cancer intervened. Once I found out about it, I stopped letting him nurse on that side. And this week, the other side had some weird spots on an MRI. My doctor asked if I’d been breastfeeding on that side, and when I said yes, he let me know that was the culprit. I knew I’d have to quit altogether soon anyway because I’m about to start chemo, so I decided that day to pull the plug.

My son was not pleased. He’s too little to understand, so he cried a good bit when I told him no. And then I cried because I never expected our breastfeeding journey to end this way. Even though it was certainly time, we were forced to stop, unable to end it on our own terms. I know it’s the best thing for us both, but it still hurts.

Cancer takes so many things away from a person. I’ve just begun my journey, so I haven’t lost the biggies yet, like my hair or even my breasts, but these little losses are still pretty tough. They serve as constant reminders that my life is no longer in my control, and that things will never be the same again.

 

“I have cancer.”

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One of the things that people don’t tell you about having cancer is how hard it is to tell other people about your diagnosis. I mean, who wants to call someone they care about and drop a giant turd like that?

I’m still in the process of telling people. There are friends whom I care about but don’t talk to often that I still haven’t told. It’s just awkward. “Hey, I know it’s been a couple of months since we spoke, but I have cancer.”

See? Awkward as hell.

But here’s the thing about telling: It actually feels kind of good once you get past the awkward part. The amount of support I’ve felt in the last two weeks from family, friends and coworkers has been incredible. It has moved me to tears more than once. And it has reminded me that even though I’ve been dealt a pretty shitty hand, I’m also incredibly fortunate.

So, I’ll keep telling. The awkward will pass, but what I’ve found is the love will remain.

The Worst Layover Ever

I found out I have cancer as I was boarding a plane in the Atlanta airport, en route to Chicago for a work trip. My boss and another coworker were with me. I stood in the crowded terminal, struggling to hear and comprehend the words of the radiologist while boarding orders were announced and fellow travelers streamed around me.

It was like a scene out of some kind of really terrible chick flick.

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This is not where you want to receive really terrible news.

But we don’t get to choose where we get shitty news like this. And we don’t get to choose the point in life when something like this happens. Were I to get that choice, I’d decide at 102 it was time and they could throw whatever they wanted at me.

Instead, I got cancer at age 37. Thirty-freaking-seven. I don’t smoke, I exercise regularly and I’m relatively healthy. I have an almost-two-year-old. I am just starting to hit my stride in my career. My marriage is great. I am comfortable. I am happy. Why the hell is this happening now?!

The thing is, cancer doesn’t give a damn what you’ve got going on. Happy and healthy? Too bad. Old and alone? Sorry, not sorry. Broke and barely getting by? Tough shit.

Cancer is an asshole, and cancer does not care. And that’s the biggest lesson I’ve learned, thus far. It doesn’t matter who you are, where you are or what you’re doing. It can happen to anyone.

So, I’ve become that annoying person who reminds everyone to do their breast checks and go to their annual physicals and get that weird mole checked out. Yes, those things can be annoying and slightly scary, but they also can give you the gift of time that can save your life. I’m thankful I found my lump when I did and not a year from now. And as anyone with this disease will tell you, any little leg up you can get in this battle is good.

All that said, this blog is mostly a place for me to dump my feelings and experiences. If someone else can get something from it, that’s even better. Thanks for reading.