10 Years

I’m a bit late writing this, but this year is a big one for me—my 10-year cancerversary. I was diagnosed with Stage II breast cancer (invasive ductal carcinoma, to be exact) on July 11, 2016. If you’d told me that day that I would be here now writing this post, I’m not sure I would have believed you. The absolute terror I felt the moment I learned I had cancer felt overwhelming and all-encompassing—I just knew it was a death sentence.

But with treatment, lots of therapy and the grace of God, here I am. I’m happy, mostly healthy and so damn grateful for every single day I get in this life. That said, survivorship is a hell of a ride, and there have been a few recent bumps in that road.

A few years ago, I began a pancreatic cancer screening program based on my family history and BRCA2 gene mutation, both of which put me at a higher risk for this form of the disease. I’m still relatively young—I’ll be 48 next month—but I want to be as proactive as possible considering how insidious and deadly pancreatic cancer can be. As part of that protocol, I got an MRI last fall to ensure there aren’t any abnormalities in my pancreas. When the results came in, I was stunned—my pancreas looked fine, but my liver did not.

Cue the stomach drop, I have mets, OMG I’M GOING TO DIE, panic. Thankfully, it’s not that serious, but it’s not great, either. The MRI discovered I have non-alcoholic fatty liver disease, as well as a blood clot on one of the vessels that feeds my liver. While I’ve gained some weight over the past decade (thanks, menopause!), I didn’t think I was so overweight that I’d have fatty liver disease, much less a blood clot (I have zero history of any sort of cardiovascular issue). Turns out, the culprit was something I’ve been depending on for the last nearly 10 years: tamoxifen.

Tamoxifen, the little wonder drug that blocks my body from turning estrogen into tumors (my cancer was ER/PR+), also has the capability to cause fatty liver disease and blood clots. I had no idea! And I’d still have no idea had I not been in this pancreatic cancer screening program.

My oncologist immediately took me off tamoxifen and switched me to letrozole, an aromatase inhibitor that essentially does the same thing tamoxifen did, without the liver damage. I’ve been on it since January, and it has been fine, so far. I still have joint pain and other side effects that I had with tamoxifen, but hopefully my liver is under less stress. I wrote more about the situation in this essay for BezzyBC.

This scare also pushed me to mostly cut alcohol out of my life. I was never a big drinker, but I’m even less so now, only occasionally having a drink or two. I feel much better without alcohol, and I truly don’t miss it that much.

So, what happens next? Honestly, I’m not sure. I have my annual visit with my oncologist next week, so I’ll discuss any additional next steps with her. I also want to chat with my GI doctor, who oversees the pancreatic cancer screening, to find out if I’ll have another MRI this fall (I don’t get them as often as is actually prescribed because they are hella expensive).

For now, I’m staying the course—taking my meds and trying to do what I can to be as healthy as possible. Cancer doesn’t end the day you receive the “no evidence of disease” diagnosis, a lesson I keep learning as I navigate this winding road of survivorship.

Sharing My Story

Hello, and longtime, no post! I remember reading cancer blogs not long after being diagnosed and getting frustrated when the blogger stopped posting. Now I know why those posts tapered off: In the best case scenario, the blogger’s treatment works and they’re able to move on with their life. I admit that’s what has happened here. While I still write about my experience with cancer, I haven’t been as active on this blog because my life revolves less around that part of my life and more on my work, family, happy things.

That said, I recently appeared on the amazing Ladybits & Leadership podcast to talk about my struggle with cancer treatment and moving on after that treatment ends. Life after cancer is a mixed bag–joy, relief, anxiety, fear. I feel all those emotions, as do others who’ve gone through this experience. And I hope that by sharing my story on a larger platform, I can help make others feel less alone.

Want to listen to the podcast? Find it anywhere you get podcasts or here.

Cancerversaries, Scanxiety and Other Made-up Words that Rule a Cancer Survivor’s Life

I never thought I’d reach this point. In 2016, when I reeled from the gut punch of my breast cancer diagnosis, when my trust in my body was lost, when I worried I might not live to see my son grow up, I simply could not imagine being five years post-diagnosis.

Five years is a big deal for breast cancer patients. Most cancers recur within the first five years after diagnosis, so to make it to that milestone means your likelihood of recurrence goes down. You can relax a little, quit worrying so much. Or so I thought.

When my five-year cancerversary rolled around in July, I felt mixed emotions. Certainly thankful, joyful even, but also nervous. Could it actually be possible that this nightmare was behind me? Wasn’t there another shoe out there, just waiting to drop?

Particularly as a carrier of the BRCA2 gene mutation, I feel like cancer is my fate, and there’s no way I could’ve gotten off this easily.

A couple of weeks after my cancerversary, I had my annual appointment with my oncologist. He went on and on about how great my blood work looked, how well I was doing, how delighted he was to see me so healthy. But he also wanted me to look into starting a pancreatic cancer screening program.

Pancreatic cancer is one of the types associated with BRCA gene mutations. My maternal grandmother and great-grandfather (her dad) both had pancreatic cancer that metastasized to their livers, ultimately killing them. With that one-two punch of risk factors, I was actually happy to start a screening program. I know how insidious pancreatic cancer can be, and I also know it doesn’t discriminate by age–I think Chadwick Bozeman taught us all that tragic lesson.

So last week, I reported to a gastroenterologist who specializes in pancreatic and liver screenings. As he perused my chart, noting my medical history and my family’s history, I suddenly felt nervous. How many red flags waved before him?

After reviewing my records, he explained the possible screening program–every six months, I would have blood work done and either an abdominal MRI or an endoscopy scan of my pancreas to look for small abnormalities. With this kind of rigorous screening, any little change could be discovered, meaning if cancer develops, they’d likely catch it early.

Early detection for pancreatic cancer is critical, yet it rarely happens. Generally, by the time a person exhibits symptoms, the disease has progressed beyond the point of successful treatment. Pancreatic cancer has a tendency to spread to nearby organs, particularly the liver, making it even more dangerous.

As I contemplated the monetary expense of the screening he proposed, not to mention the time investment and the invasive and unpleasant nature of the scanning methods, I knew I should have felt apprehensive. But I didn’t. When he asked me what I thought, I told him that my greatest fear is dying before my son grows up. So if there’s anything I can do to prevent that from happening, no matter how unpleasant or expensive, I want to do it.

With that decision, the doctor set up my first MRI, which I had this morning. With a handful of MRIs under my belt, I felt like an old pro as I entered the radiology department. I removed all the metal from my body, donned a gown and climbed up onto the rolling bed that slid me inside the hulking machine. My eyes squeezed shut, I lay stock still, only moving to breathe, as the otherworldly cacophony of sounds dinged and rattled around me.

As I lay there, I wondered what it was seeing. What the contrast dye coursing through my veins would reveal.

After about a half-hour, it was over. I went to Lowe’s afterward to pick up a few things, and noticed my phone ringing as I walked into the store–my doctor’s office. I answered, and the woman on the other line said they’d received my scan results, but that the doctor was at the hospital today and wouldn’t be able to talk to me about the notes and next steps. Instantly, I felt as though the floor dropped out from under me. Notes?! Next steps?!

I composed myself long enough to pay for my items and leave the store, moving through the breathtakingly beautiful morning in a daze. My mind raced: chemo, surgery, radiation, death.

For most of the day, I spiraled, consulting Dr. Google and crying over the incredibly bleak survival rates of pancreatic cancer. How could this be happening again?

Suddenly my phone buzzed–an email from MyChart. My heart beating out of control, I logged in and saw my results were uploaded. I clicked the link and read the long list of findings. Pancreas, liver, gallbladder, spleen, stomach–they all looked normal. I felt like I’d just won the lottery.

But the report wasn’t totally good. The scan revealed some “nonspecific nodules” on the lower portion of my lungs. Of course, that freaked me out, too, but after some Googling, I found that lung nodules are fairly common and usually benign. I’ll have a CT scan to confirm (yay, more scanxiety!), but for right now, I’m holding onto that and trying to remain hopeful.

Today has been a reminder of the reality of life after cancer. Most days, I’m fine and not constantly freaking out over every little ache and pain like I did in the first year or so after completing treatment. Sometimes I even forget about cancer and feel like a normal person. But the fear is still there. And when it rears its ugly head, it still shocks me with its intensity.